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Home » What's New » Sjogren’s Awareness Month – Understanding The Invisible Disease 

Sjogren’s Awareness Month – Understanding The Invisible Disease 

In honor of Sjogren’s Awareness month, eye care providers are helping to spread the word to increase awareness about this hard-to-diagnose disease.

Sjogren’s is a systemic autoimmune disorder that can affect the whole body. One of the primary symptoms is excessive dryness particularly in the eyes and mouth. Other serious symptoms include chronic fatigue and pain, specifically in the joints, as well as major organ dysfunction. The syndrome also increases chances of neuropathies and lymphomas. 

The severity of the disease varies greatly, ranging from mild discomfort to debilitating symptoms that can seriously impair normal functioning in everyday life. Early diagnosis and treatment can prevent serious complications and improve quality of life. There is currently no cure for Sjogren’s, yet there are treatments for many of the individual symptoms. On average patients are prescribed upwards of 8 medications to treat the wide range of symptoms. 

Women are nine times more likely to develop Sjogren’s than men and diagnosis usually occurs around the age of 40. Unfortunately, because the symptoms vary from person to person, and the disease often occurs in the presence of or mimics other diseases (such as lupus, rheumatoid arthritis, menopause, allergies or multiple sclerosis) the disease is often misdiagnosed or overlooked. Further, because the symptoms can affect different parts of the body system such as the teeth, eyes or musculoskeletal system, various health professionals are sought to diagnose or treat specific symptoms (such as rheumatologists, dentists or eye doctors) while the big picture is often missed. On average it takes almost three years to obtain a Sjogren’s diagnosis once symptoms are noticed.  

Since dry eye is one of the most common early symptoms of the disease, there has been an effort to educate eye care providers to recognize and to be aware to look for symptoms of the disease. Patients also need to be aware and proactive about speaking to their health care providers about potential diagnosis and treatment. Knowing the risk factors and symptoms can be imperative to a faster diagnosis. 

Your eye doctor may be able to detect and diagnose Sjogren's syndrome from dry eye symptoms as well as other diagnostic tests and review of symptoms. With this diagnosis the treatment will be different from typical dry eye disease. Since it is an autoimmune disease, lubricating eye drops may provide temporary relief but will not address the source of the problem. Your doctor may prescribe newer cyclosporine drops as well to treat the inflammatory response. If you have dry eyes and typical treatments aren’t working, it may be worthwhile to ask about Sjogren’s. 

Sjogren’s patients often feel misunderstood because most of the debilitating symptoms are not visible to others and the disease is often not recognized largely due to a lack of awareness. By increasing both public and professional awareness, the goal is to reduce diagnosis time and to advance research on the cure for this disorder.

Dear Patients and the surrounding community,

We are currently seeing patients by appointment only and on a limited basis.

  •  If you need to replace glasses or contact lenses and need an extension on your prescription, please contact us and we will assist you in obtaining some until you can come in for a visit.
  •  If you are running out of medication please contact us and we can transmit a refill electronically to your pharmacy.
  • If you have an issue which cannot wait for an office visit, contact us and we will schedule a FaceTime or Telephone appointment with one of our doctors. Medicare has temporarily relaxed its telehealth rules to allow this type of communication during the pandemic crisis. Other insurers may follow suit and allow for reimbursement of virtual care costs. The consultation must be initiated at your request.
  • If you have an ocular emergency we are, as always, available to help you at any time. Call 714-530-2020 and wait for instructions at the end of the message. Dr. Gaylord or Dr. Inman will try their best to meet you in the office whenever possible.  If not we will direct you to the nearest eye emergency facility.
  • During this period of social distancing and quarantine, we must all do our part by restricting activities outside the home except for getting medical care. Do not go to work, school, or public areas. Avoid using public transportation, ride-sharing, or taxis.
  • Please remember that 80% of COVID-19 cases are mild and resolve within a week. However, if you feel your symptoms are worsening, call ahead before visiting your doctor’s office or emergency department and tell them you have or may have COVID-19. This will help the office protect themselves and other patients.

The CDC has many wonderful resources. Arming yourself and your family with clear information will help you avoid undue stress.https://www.cdc.gov/coron…/2019-ncov/prepare/prevention.htmlhttps://www.cdc.gov/…/…/prepare/managing-stress-anxiety.html

With sincerest wishes for your continued good health, we remain at your service,

Ann Inman, OD
Eric Gaylord. OD
Garden Grove Optometry